Dear parent and caregiver of a child with Bohring-Opitz Syndrome! We invite you to submit the survey about "Growth chart of children with BOS". When a child is diagnosed with this syndrome, parents are generally left in a stressful situation with numerous unanswered questions about the future prognosis of their child. To extend knowledge and informational resources for parents and caregivers of children with Bohring-Opitz your contribution is very important. The more participants we can get together the better and the reliable the data! Do you know a parent of a child with BOS, please share this survey. Thank you for your contribution!